Maiah's Visual Bucket List - Why I'm Helping a Dream Come True

Some of you might be wondering why I'm sharing a link to a Go Fund Me page to raise money for someone you've never heard of?

Well it's one of those things. Up until recently I had never heard of Maiah either. In fact her and her mother, Mandy are total strangers. Well at least they were when I first heard about them.

A few weeks ago I was reading through some comments (dangerous I know!) on a story that was shared in a post by Kidspot, which is a great online community for all things parenting relating. The post was about a woman receiving money from a radio station and other kind-hearted listeners after she had told the story of her plight of trying to find the money for therapies for her ASD child. Some comments were pointing out the fact that some of the money raised was going towards a Disneyland trip did not sit well with them. Now I don't wish to create a debate about that case … Rather to set the scene.

Because the comment that spoke to me was written by Mandy who said simply that she would love to just have the money to take her vision impaired daughter to the theme parks on the Gold Coast before she goes blind.

For some reason I couldn't get it out of my head. The idea that of all the things a child could put on a wish list she simply wanted to do what so many other kids get to do, go to the major theme parks. Plus the idea that she could actually go blind one day without ever having been able to have a theme park holiday just sounded wrong to me. Surely there was something that could be done? Living on the Gold Coast I find plenty of us take the theme parks for granted. Some kids get to go every weekend. But just one visit would be a dream come true for this one young girl and I just felt I had to try and help.

So I contacted Kidspot who got in touch with Mandy and it was agreed I could set up a Go Fund Me account. I've since spoke to Mandy who graciously told me more about her amazing daughter. I made no promises about what we might achieve as I'm hardly the type of person that makes posts go viral. However I felt I had to at least try to help.

The more I found out about Maiah the more I wanted to help. Here is a girl that has been going blind her whole life due to having a form of Rod Cones Dystrophy. Her night vision is completely gone and her peripheral vision is better than her front on vision which means she often turns her head in an attempt to make sense of her environment. So she is already vision impaired but it will progress and one day she will go completely blind. Plus recently she was also diagnosed with epilepsy.

Through all this Maiah is a happy, friendly 13 year old who loves her sisters and longs to work with animals.

She has a simple visual bucket list which lists things she would like to do before she loses her sight completely. Well I think it is a relatively simple list considering what some kids might ask for.

Her list is:

1. To see the theme parks on the Gold Coast
2. To go to Australia Zoo and meet Bindi
3. To swim with dolphins
4. To meet Luke and Cody from House Rules.

I don't know if we will be able to manage all those things. But surely we can manage to get enough money together to give this family a trip of a lifetime? Mandy and her partner have 5 children between them and have never had a family holiday. Those of us who are parents can well imagine how much Mandy wants to bring her daughter’s dream to fruition but has simply never been able to do so.

So below is the link to the campaign. I know it's often said but it really does stand in this case and that is that even a few dollars will help. If lots of people donate a few dollars then Maiah could well get her dream holiday.  If you genuinely can't spare a few dollars then that is fine too and I totally understand - but please think about sharing the link so we can get as many people knowing about this as possible.

Thanks in advance for helping!

https://www.gofundme.com/2dr9ezw

#7 Photograph of the Town You Live in.

I'm doing the Odd May Blog Challenge in an odd way. I'm doing the 7th on the 9th. Then again I probably won't do #9 since as much as I love cooking I rarely follow recipes so couldn't think of one to share.

So here is a photo of the 'town' I live in. Technically I live in a suburb of the Gold Coast so I suppose I could have used a photo of any part of the Gold Coast. But I figured since the little pocket I inhabit is actually quite lovely I would share a simple photo taken not far from home!

Cheers.

#5 - 15 Facts about YOU

So here is the challenge for May 5th in the Odd May Blog Challenge. I must admit the thought of listing 15 facts about me had me a little puzzled. I figured facts were different to what I thought about myself or the usual listing your strengths or positive traits. Then I thought listing simple facts might not make for great reading so do I elaborate or not?

Anyway I put away my crazy train of thought away and just did it. Here they are -

1. I have blue eyes and fair skin. The blue eyes are often complimented upon most notably once when I was in a dentists chair with so much stuff in my mouth keeping it open that my mumbled 'thank you' could have sounded like anything.

2. My ancestry as far as I know is a combo of English, Scottish, and Irish. I'd dearly love to find some Welsh.

3. My maiden name is Sneyd. It is a relatively rare surname and has an interesting history. The Sneyd family had a grand ancestral home in Stoke on Trent in England, Keele Hall. It is now a university.

4. I have no real 'favourite' anything. When people ask what is my favourite colour, film, TV show, food, band or song etc I honestly can't answer. I have such varied tastes that I could never choose just one of any of these things.

5. I'll stand by what I believe in - I'm steadfast. This fact comes courtesy of my husband, David. This was his response when I asked him for a fact about me!

6. I have an awesome husband! 😉 Plus a super awesome, smart, crazy son named Sachell. ( see second photo)

7. I'm a survivor of chronic illness.

8. I grew up watching Rugby League and am a passionate Wests Tigers fan.

9. I grew up in Marrickville, in the inner west of Sydney.

10. I have an irrational fear of dying of thirst in the desert. This came about after watching a mini series about one of my heroes, Sir Charles Kingsford Smith. It depicted the incident where the pilots Keith Anderson and Bob Hitchcock crashed their plane in the Tanami desert and perished. Hence why I've never done the epic journey across the Nullarbor Plain and probably never will!

11. Strangely though I don't have a problem flying in planes!

12. I can name the English line of succession from 1066 by memory.

13. I've never had a broken bone (touch wood!)

14. I currently live on the Gold Coast in Queensland. ( see photo - such a beautiful place!)

15. I hate hot weather ... So yes I live in the entirely wrong place ...